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Museum of DisABILITY History

Additional Resources

For more information:

Robert Guthrie: The PKU Story.
By Jean Holt Koch. Hope Publishing House, Pasadena, CA 91116 USA.

"The story of neonatal screening and the life story of Bob Guthrie are inextricably linked and this book by Jean Koch does justice to both." — Bob Kennedy, The Netherlands

"Koch has performed a wonderful service in bringing to us the story of Bob Guthrie and newborn screening...most importantly, she has put the story together in an interesting, informative, and memorable manner... fascinating and unforgettable...this book should be required reading for anyone directly or indirectly involved in newborn screening..." — Harvey L. Levy, Boston, Mass., USA

"National PKU News"
National PKU News is a non-profit organization located in Seattle, Wash. It is dedicated to providing up-to-date, accurate news and information to families and professionals dealing with phenylketonuria.